{"id":232,"date":"2014-07-29T15:13:25","date_gmt":"2014-07-29T15:13:25","guid":{"rendered":"http:\/\/nephceurope.net\/nc\/?page_id=232"},"modified":"2025-08-13T08:24:12","modified_gmt":"2025-08-13T08:24:12","slug":"factsheet-stichting-nephceurope","status":"publish","type":"page","link":"https:\/\/nephceurope.eu\/nc\/factsheet-stichting-nephceurope\/","title":{"rendered":"Factsheet Stichting NephcEurope"},"content":{"rendered":"

Stichting NephcEurope<\/strong><\/p>\n

Emailaddress:\u00a0mvm151969@gmail.com<\/p>\n

Belasting RSIN\/Tax code: NL 821750082B01
\nAnbi: Dossiernumber 75884 dated 10 november 2010
\nKvK number: 27365421<\/p>\n

Kamer van Koophandel Den Haag
\nRegistry number 27365421<\/p>\n

NephcEurope is an patient driven foundation for care and cure for the rare disease called Nephrotic Syndrome.<\/p>\n

Remuneration policy\/Beloningsbeleid<\/strong>
\nNephcEurope has no paid staff, but only works with volunteers. Declarations of travel expenses in case predefined approval by the official board members are the only payments made. All other income generated from donations is either spent on patient activities or research projects. The Foundation only calls for donations in case cash flow for pending projects will be too low. At this moment this is not the case.<\/p>\n

For an extensive overview please have a look at our balance sheets as published in the link below.<\/p>\n

Overview of Board members and advisors to the Board\/Namen van bestuurders
\n<\/strong>Official Board members Chamber of Commerce\/Offici\u00eble bestuurders bij Kamer van Koophandel:<\/strong>
\nChair \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 Marieke van Meel
\nSecretary\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Bart Hoogervorst
\nIn order to saveguard the objective evaluation of income, spendings and administration an external independant Adminstration Company establishes the profit and loss reporting and the balance sheets which are published on the website.<\/p>\n

General board members & Advisors<\/strong>
\nProf. Dr Jean Claude Davin
\nProf. Dr. Burkhard Toenshoff
\nMrs. Wendy Cook
\nProf. Moin Saleem
\nProf. Dr. Rishi Kafle<\/p>\n

International liaisons
\n<\/strong>Mr Kaloian Petrov (Bulgaria)
\nMr Helder Leong (Portugal)
\nMr Tom Aelterman (NephcEurope Belgium)
\nMr Siobahn Brennan (Ireland)
\nMrs Chantal Baccalado de Lara (AESNI Spain)
\nMr Andrea Pizzo (ASNIT Italy)<\/p>\n

Most recent update on activities in 2024 and 2025<\/strong><\/p>\n

In 2024 the chair of the organisation was involved in a car accident and has not been able to continue the ambitions of that year and the first half year of 2025. The networks were informed and the chairs of the cooperative parties in the various countries stepped up to visit congresses etc.
\nThe organization has been in close contact with the international contact points of ongoing developments in research, clinical trials and medication development. In general there are developments but nothing yet which really makes the change. There was no request from European Medicine Agency to get engaged in an advisory board. Nephceurope is continuing the financial support for the website of the National Dutch academic expert network. For more information visitinetworkhttps:\/\/nefrotischsyndroom-expertise.net<\/p>\n

The work for Nepal continues in slow pace. The focus of the activities has been on public affairs to the benefit of health care of patients with a Nephrotic Syndrome.<\/p>\n

Activities since 2010\/Overzicht activiteiten sinds 2010<\/strong><\/p>\n

Organisation of international events:<\/strong><\/span><\/p>\n