![\"barthoogervorst[1]\"](\"http:\/\/nephceurope.net\/nc\/wp-content\/uploads\/2014\/07\/barthoogervorst1.jpg\")
<\/a>My name is Bart Hoogervorst and I am 25 years old. I have nephrotic syndrome (FSGS). I have this rare disease, since I was 2. That’s now 24 years (I’ am almost 26). I have had several recidivisms, the last one was in october 2008.\nWhen I was 16, I had my last biopsy, before that I had MC. Because of the biopsy they found out that it was FSGS.<\/p>\n
I have medicines to stay stable. I have cyclosporine and I also have an ACE inhibitor. The cyclosporine I have had for 13 years now.<\/p>\n
I’ am studying international hospitality management at the Hotelschool in the Hague.
\nAt the moment I do not have a job. Although I am working as a volunteer.<\/p>\n
I have different hobbies\/interests. One of them is to watch sport, on the TV. Especially soccer, tennis, cycling and ice speed skating (I am Dutch). At the moment I am not practising any sports myself. I also love to have a drink and a bite with friends. Especially wine is one of our favorite drinks. I also love to read a book, and I am interested in politics. Cooking is also one of my hobbies.<\/p>\n
Since 2007 I am working as a volunteer by the Dutch kidney patient-organization. I am in two committees; Board for Nephrotic Syndrome and Young Adults. With the Young Adults I am the financial manager. Within the Dutch Board of Nephrotic Syndrome, I do international work. Because of this work I came in contact with the NephcEurope initiative. I support this initiative. I think it’s great that different countries are working together to find a cure for Nephrotic Syndrome. I am positive that in the future, because of all this hard work, we will find a cure!<\/p>\n
If you have any questions for me. Don’t hesitate to contact me.<\/p>\n
All the best,
\nBart<\/p>\n","protected":false},"excerpt":{"rendered":"
Hello everybody, My name is Bart Hoogervorst and I am 25 years old. I have nephrotic syndrome (FSGS). I have this rare disease, since I was 2. That’s now 24 years (I’ am almost 26). I have had several recidivisms, the last one was in october 2008. When I was 16, I had my last […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5],"tags":[],"class_list":["post-196","post","type-post","status-publish","format-standard","hentry","category-who-are-we"],"_links":{"self":[{"href":"https:\/\/nephceurope.eu\/nc\/wp-json\/wp\/v2\/posts\/196"}],"collection":[{"href":"https:\/\/nephceurope.eu\/nc\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/nephceurope.eu\/nc\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/nephceurope.eu\/nc\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/nephceurope.eu\/nc\/wp-json\/wp\/v2\/comments?post=196"}],"version-history":[{"count":4,"href":"https:\/\/nephceurope.eu\/nc\/wp-json\/wp\/v2\/posts\/196\/revisions"}],"predecessor-version":[{"id":205,"href":"https:\/\/nephceurope.eu\/nc\/wp-json\/wp\/v2\/posts\/196\/revisions\/205"}],"wp:attachment":[{"href":"https:\/\/nephceurope.eu\/nc\/wp-json\/wp\/v2\/media?parent=196"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/nephceurope.eu\/nc\/wp-json\/wp\/v2\/categories?post=196"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/nephceurope.eu\/nc\/wp-json\/wp\/v2\/tags?post=196"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}